Providing a platform to open the subjects of Orphan, Neglected and Un-served diseases

ODF connects orphan disease patients and
doctors working on it globally.

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Orphan diseases

In total there are about 7,000 known Orphan diseases but only about 400 approved treatments.

worldwide

More than 300 million people worldwide are impacted by one of approximately 7000 known orphan disease.

treatment

Majority of Orphan diseases are without treatment.

Who we are

ODF is managed and run by Swati Spentose Pvt Ltd (SSPL)

We are a globally leading company in areas of Orphan, Neglected & Un-served Diseases. With a 45 year old established history and clients in over 60 countries word wide, we stand apart as a leading healthcare solution provider.

Find out more about SSPL >

How Orphan Disease Foundation Works

Step 1

Select Disease

  • Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS)
  • Prion, Creutzfeldt-Jakob Disease (CJD)
  • Mucopolysacchridosis (MPS)
  • Diabetic Nephropathy (DN)
  • Varicose Veins (VV)
Step 2

Who are you?

  • Doctor
  • Researcher
  • Scientist
  • Medical Institute
  • Others
  • Patient
  • Patient counselor
  • Care Taker
  • Others
Step 3

Segmentation of Specialization

  • Urologist
  • Microbiologist
  • Dermatologist
  • Nephrologist
  • Endocrinologist
  • Biotechnologist
  • Oncologist
  • Neurologist
  • Dietician/Nutritionist
  • Pathologist
  • Physiotherapist
  • Geneticist
  • Physiatrist
  • Gynecologist
  • GP’s
  • Radiologist
  • Rheumatologist
  • Hematologist
  • Cardiologist
  • Gastroenterologist
Step 4

Interests, Suggestions, Contribution

  • Define Individual Interest in the area of the disease.
  • Suggestions/Ideas to contribute in our journey of disease awareness & management.

Objectives of Orphan Disease Foundation

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    To open the subjects of Orphan, Neglected and Un-served diseases.
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    To engage all stakeholders (Doctors /Patient) to build knowledge based platform.
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    To develop a platform for help, questions and support regarding the Diseases.
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    To connect disease patients and the doctors working on it globally.
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    To exchange ideas and advises for better access of diagnosis and treatment of the diseases.
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    To establish a clear and well define diagnosis and prognosis pathways for all stakeholders moving forward worldwide.
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